I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary winter day, normal and rainy like a typical December day … Continue reading My Path to Diagnosis
For the second year, Ehlers-Danlos awareness is my goal for May Last year I participated in my first Ehlers-Danlos Syndrome Awareness month with the goal of earning a pin for … Continue reading Meet Me: EDS in May
Gardens do not just create food for our bodies, but they also create nourishment for our souls.
When I made the difficult decision to leave the Mormon church, I knew there would be a few ripples from my social life. I expected to lose many if not … Continue reading Interviewed by Friends
If you’ve followed my writing for a while, you may consider yourself used to my fits and starts. During this most recent quiet period, you may have also noticed that … Continue reading Continuing My Path
It was only days after my official autism diagnosis that I felt compelled to download and install an app I had sworn never to. For many months, I had been … Continue reading Luered to TikTok for Advocacy
I’m just saying it should not have been a leap that took more than half of a century to make.
Why did it take a half of a century to make this leap? I daresay because I have a vagina.
Before I go too far, let me preface this. Unlike some of my articles that have been extensively researched, this one is primarily based on my personal experience and theories. … Continue reading My Bendy Brain: Mental Health and Ehlers-Danlos
I have made no secret of the fact that I endure a considerable amount of pain in relation to my Ehlers-Danlos Syndrome and the subsequent antibiotic injury. How do I manage my Ehlers-Danlos? That … Continue reading A Balm for the Bruises and Bends