Category: EDS
My Path to Diagnosis
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary winter day, normal and rainy like a typical December day … Continue reading My Path to Diagnosis
Meet Me: EDS in May
For the second year, Ehlers-Danlos awareness is my goal for May Last year I participated in my first Ehlers-Danlos Syndrome Awareness month with the goal of earning a pin for … Continue reading Meet Me: EDS in May
Luered to TikTok for Advocacy
It was only days after my official autism diagnosis that I felt compelled to download and install an app I had sworn never to. For many months, I had been … Continue reading Luered to TikTok for Advocacy
Processing this Diagnosis
I’m just saying it should not have been a leap that took more than half of a century to make.
Why did it take a half of a century to make this leap? I daresay because I have a vagina.
My Bendy Brain: Mental Health and Ehlers-Danlos
Before I go too far, let me preface this. Unlike some of my articles that have been extensively researched, this one is primarily based on my personal experience and theories. … Continue reading My Bendy Brain: Mental Health and Ehlers-Danlos
A Balm for the Bruises and Bends
I have made no secret of the fact that I endure a considerable amount of pain in relation to my Ehlers-Danlos Syndrome and the subsequent antibiotic injury. How do I manage my Ehlers-Danlos? That … Continue reading A Balm for the Bruises and Bends
Diagnosis: Zebra
After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That is what doctors in training are taught. (To listen click … Continue reading Diagnosis: Zebra
Owning Her Stripes
For most of her life, she had experienced pain. Pain that other people said couldn’t exist.
Autism Awareness: Accepting a New Diagnosis
April is Autism Acceptance (and Awareness) month. What better month to ask some questions of my therapist and get to the bottom of some questions I’ve had for a while? … Continue reading Autism Awareness: Accepting a New Diagnosis