For the past 69 days, I’ve been sharing a countdown in coordination with a count up of days. The countdown is for the first surgery that is planned for this … Continue reading A Chronic Pause
Category: Ehlers-Danlos Syndromes
Zebra Hope
Does your doctor listen to you?
Before and After: A Poem
Before my Ehlers-Danlos diagnosis,Athena and I bent ourselves around one another to sleep. Before my ASD diagnosis, Athena helped me stim. Before my sensory processing disorder diagnosis, Athena helped me … Continue reading Before and After: A Poem
Make-up for Lost Time
You would not be able to tell from most of the videos over the past year-But makeup is one of my special interests. I stopped wearing makeup while I was … Continue reading Make-up for Lost Time
Caring for Me
She was only 18 when she started-But our bond would grow tighter than I could imagine
The Quality of My Life
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
Wrapping Up A Month of Awareness and Preparing for Pride
It’s been a month! Thanks for connecting to me and for taking your time to read the posts I’ve shared. Below is the latest episode of my vlogcast with updates … Continue reading Wrapping Up A Month of Awareness and Preparing for Pride
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
The Value of Visibility
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of my zipper pouch, purchased with gift card funds from the … Continue reading The Value of Visibility
What I Wish Everyone Knew About Ehlers-Danlos
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
M.E. Slighte 