Recently, it was time for me to be re-evaluated for my next powerchair. I used the opportunity to document the process. And yes, given the current government administration, I have … Continue reading How to Get A Wheelchair
Category: Ehlers-Danlos Syndromes
Free Speech is Dead
If you follow me, you’ll know that even though I haven’t been writing a lot over here, I have been very active since April 2021 on an app called TikTok. … Continue reading Free Speech is Dead
A Chronic Pause
For the past 69 days, I’ve been sharing a countdown in coordination with a count up of days. The countdown is for the first surgery that is planned for this … Continue reading A Chronic Pause
Zebra Hope
Does your doctor listen to you?
Before and After: A Poem
Before my Ehlers-Danlos diagnosis,Athena and I bent ourselves around one another to sleep. Before my ASD diagnosis, Athena helped me stim. Before my sensory processing disorder diagnosis, Athena helped me … Continue reading Before and After: A Poem
Make-up for Lost Time
You would not be able to tell from most of the videos over the past year-But makeup is one of my special interests. I stopped wearing makeup while I was … Continue reading Make-up for Lost Time
Caring for Me
She was only 18 when she started-But our bond would grow tighter than I could imagine
The Quality of My Life
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
Wrapping Up A Month of Awareness and Preparing for Pride
It’s been a month! Thanks for connecting to me and for taking your time to read the posts I’ve shared. Below is the latest episode of my vlogcast with updates … Continue reading Wrapping Up A Month of Awareness and Preparing for Pride
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
M.E. Slighte 