A disabled, trans perspective on new federal policy threats, survival with chronic illness, and the radical hope of community care
A disabled, trans perspective on new federal policy threats, survival with chronic illness, and the radical hope of community care
Recently, it was time for me to be re-evaluated for my next powerchair. I used the opportunity to document the process. And yes, given the current government administration, I have … Continue reading How to Get A Wheelchair
For the past 69 days, I’ve been sharing a countdown in coordination with a count up of days. The countdown is for the first surgery that is planned for this … Continue reading A Chronic Pause
Does your doctor listen to you?
When the call came, I jokingly repeated, “I told them to do the ultrasound while I was there, but they didn’t listen.”
You would not be able to tell from most of the videos over the past year-But makeup is one of my special interests. I stopped wearing makeup while I was … Continue reading Make-up for Lost Time
She was only 18 when she started-But our bond would grow tighter than I could imagine
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
As I write this, more than 10 full-time home health care positions exist within a mile of my location and there is no one to fill them.
…The nurse then turned to my mother and asked if I was planning to give my baby up for adoption.