Trigger warning: Sexual assault June has once again arrived. One of my personalities deleted all of the social media apps off of my phones overnight. A distinct sign that someone … Continue reading The Ebb and Flow of Trauma
Trigger warning: Sexual assault June has once again arrived. One of my personalities deleted all of the social media apps off of my phones overnight. A distinct sign that someone … Continue reading The Ebb and Flow of Trauma
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of my zipper pouch, purchased with gift card funds from the … Continue reading The Value of Visibility
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary winter day, normal and rainy like a typical December day … Continue reading My Path to Diagnosis
For the second year, Ehlers-Danlos awareness is my goal for May Last year I participated in my first Ehlers-Danlos Syndrome Awareness month with the goal of earning a pin for … Continue reading Meet Me: EDS in May
Gardens do not just create food for our bodies, but they also create nourishment for our souls.
It was only days after my official autism diagnosis that I felt compelled to download and install an app I had sworn never to. For many months, I had been … Continue reading Luered to TikTok for Advocacy
Before I go too far, let me preface this. Unlike some of my articles that have been extensively researched, this one is primarily based on my personal experience and theories. … Continue reading My Bendy Brain: Mental Health and Ehlers-Danlos