For the past 69 days, I’ve been sharing a countdown in coordination with a count up of days. The countdown is for the first surgery that is planned for this … Continue reading A Chronic Pause
Tag: chronic pain
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
Zebra Wrangling: Managing those pesky symptoms
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms
What I Wish Everyone Knew About Ehlers-Danlos
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
My Path to Diagnosis
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary winter day, normal and rainy like a typical December day … Continue reading My Path to Diagnosis
Owning Her Stripes
For most of her life, she had experienced pain. Pain that other people said couldn’t exist.
10 Years After My War on Drugs
Ten years ago, I began a war against a drug that now takes the life of thousands daily
These Antibiotics are Killing People Every Day
Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?
A Power Chair Gave Me Back My Life
Walking hurt, so I stopped walking. When it stopped hurting as much, the pain was replaced with neuropathy and when I walked, I began falling. The day before my 52nd birthday, a powerchair was prescribed. I waited with bated breath for the freedom that it offered.
A Bad Drug
When I returned to my home state of Washington in July 2017, my broken, disabled body was less able than it had been in years. My first order of business … Continue reading A Bad Drug
M.E. Slighte 