She was only 18 when she started-But our bond would grow tighter than I could imagine
Tag: disability
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
The Value of Visibility
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of my zipper pouch, purchased with gift card funds from the … Continue reading The Value of Visibility
Zebra Wrangling: Managing those pesky symptoms
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms
Luered to TikTok for Advocacy
It was only days after my official autism diagnosis that I felt compelled to download and install an app I had sworn never to. For many months, I had been … Continue reading Luered to TikTok for Advocacy
My Bendy Brain: Mental Health and Ehlers-Danlos
Before I go too far, let me preface this. Unlike some of my articles that have been extensively researched, this one is primarily based on my personal experience and theories. … Continue reading My Bendy Brain: Mental Health and Ehlers-Danlos
Owning Her Stripes
For most of her life, she had experienced pain. Pain that other people said couldn’t exist.
Waiting for a Home I Can Use
The reality of living in the Pacific Northwest as a disabled person during a housing crisis In October 2018, the day before my 52nd birthday, my doctor prescribed a power chair for … Continue reading Waiting for a Home I Can Use
These Antibiotics are Killing People Every Day
Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?
Revisiting A Bad Drug – One Year Plus After an Antibiotic Injury
When I think back to my life, just 19 months ago… camping… Something I don’t know if I will ever be able to do again…thanks to an antibiotic…
M.E. Slighte 