A disabled, trans perspective on new federal policy threats, survival with chronic illness, and the radical hope of community care
Tag: Disabilty
How to Get A Wheelchair
Recently, it was time for me to be re-evaluated for my next powerchair. I used the opportunity to document the process. And yes, given the current government administration, I have … Continue reading How to Get A Wheelchair
The Quality of My Life
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
Teach Our Children Jobs
As I write this, more than 10 full-time home health care positions exist within a mile of my location and there is no one to fill them.
My Path to Diagnosis
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary winter day, normal and rainy like a typical December day … Continue reading My Path to Diagnosis
Luered to TikTok for Advocacy
It was only days after my official autism diagnosis that I felt compelled to download and install an app I had sworn never to. For many months, I had been … Continue reading Luered to TikTok for Advocacy
Diagnosis: Zebra
After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That is what doctors in training are taught. (To listen click … Continue reading Diagnosis: Zebra
Asking for Help
What happens when a disabled person can no longer care for themselves and their home? Asking for help seems simple, perhaps, for those who’ve never had to, but for those of us who are used to doing for ourselves, it is quite complex.
M.E. Slighte 