In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms
It was only days after my official autism diagnosis that I felt compelled to download and install an app I had sworn never to. For many months, I had been … Continue reading Luered to TikTok for Advocacy
I have made no secret of the fact that I endure a considerable amount of pain in relation to my Ehlers-Danlos Syndrome and the subsequent antibiotic injury. How do I manage my Ehlers-Danlos? That … Continue reading A Balm for the Bruises and Bends
After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That is what doctors in training are taught. (To listen click … Continue reading Diagnosis: Zebra
For most of her life, she had experienced pain. Pain that other people said couldn’t exist.
For weeks we worked with my physicians to discover that although my swallow reflex was completely intact, I could no longer feel that area of my throat, which caused me to panic.
Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?