Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
Tag: neuropathy
Zebra Wrangling: Managing those pesky symptoms
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms
Diagnosis: Zebra
After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That is what doctors in training are taught. (To listen click … Continue reading Diagnosis: Zebra
A Power Chair Gave Me Back My Life
Walking hurt, so I stopped walking. When it stopped hurting as much, the pain was replaced with neuropathy and when I walked, I began falling. The day before my 52nd birthday, a powerchair was prescribed. I waited with bated breath for the freedom that it offered.
M.E. Slighte 